ALS Resources
Are you or a loved one affected by amyotrophic lateral sclerosis (ALS)? Are you a therapist, physician, or healthcare professional who works with patients who have ALS? If so, then this article is for you. We’ve compiled a list of some of the top ALS resources to help you stay informed about the latest research, new treatments, and various types of assistance available to help individuals with ALS improve their independence, stay connected with family and friends, and make new friends through becoming involved with a community of ALS advocates.
This page is your new “go-to” for everything ALS. You’ll definitely want to bookmark it!
News, Research, & Clinical Trials
- ALS Association – Research
https://www.als.org/research-matters - Les Turner ALS Foundation – Clinical Trials
https://lesturnerals.org/research-patient-center/clinical-trials-studies/ - National Institutes of Health (NIH) – Clinical Trials
https://www.clinicaltrials.gov/search?term=amyotrophic%20lateral%20sclerosis - Lois Insolia ALS Clinic
https://lesturnerals.org/research-patient-center/lois-insolia-als-clinic/ - Create
https://create.rarediseasesnetwork.org/ - ALS Therapy Development Institute
https://www.als.net/ - Centers for Disease Control and Prevention
https://www.cdc.gov/als/ALSExternalResearchfundedbyRegistry.html
Organizations
- ALS Association
https://www.als.org/ - Les Turner ALS Foundation
https://lesturnerals.org/ - NEALS – Northeast Amyotrophic Lateral Sclerosis Consortium
https://neals.org/ - Muscular Dystrophy Association
https://www.mda.org/disease/amyotrophic-lateral-sclerosis - I Am ALS
https://www.iamals.org/ - Everything ALS
https://www.everythingals.org/ - ALS Hope Foundation
https://www.alshf.org/
Community & Support
- ALS Association – Support Groups
https://www.als.org/support/support-groups - Les Turner ALS Foundation – Support Groups
https://lesturnerals.org/support-services/free-als-support-groups-online/ - ALS Association – Navigating Resources
https://www.als.org/navigating-als/resources - Your ALS Guide
https://www.youralsguide.com/support-services.html - ALS Pathways
https://www.alspathways.com/als-resources/ - ALS Hope Foundation
https://www.alshf.org/resources
Caregivers
- ALS Association – Resources for Caregivers
https://www.als.org/navigating-als/for-caregivers/caregivers-resources - Family Caregiver Alliance
https://www.caregiver.org/resource/amyotrophic-lateral-sclerosis-als-caregiver-resource-guide/
ALS & the autonoME
- “Live Life” Says Veteran with ALS
https://accessibilityservices.com/live-life-says-veteran-with-als/ - Financial Assistance for autonoME
https://accessibilityservices.com/qol-grants-provide-financial-assistance/ - ALS and Speech Loss
https://accessibilityservices.com/als-and-speech-loss/ - ALS and AAC
https://accessibilityservices.com/als-and-aac/ - ALS and Environmental Control
https://accessibilityservices.com/als-and-environmental-control/ - Voice Banking
https://accessibilityservices.com/als-communication-assistive-technology/ - autonoME and ALS
https://accessibilityservices.com/the-autonome-and-als/ - Veterans and ALS
https://accessibilityservices.com/veterans-and-als/
https://accessibilityservices.com/als-and-military-veterans/ - ALS Assistive Technology
https://accessibilityservices.com/veterans-and-als/
https://accessibilityservices.com/benefits-assistive-technology-autonome/ - Bulbar Testing
https://accessibilityservices.com/bulbar-testing-and-als/ - Eric’s Story
https://accessibilityservices.com/meet-beautiful-couple/
Have you benefited from a resource that you do not see on this list? If so, we would love to add it. Please send us the link – erica.jones@accessibilityservices.com.
